PROOF that the NDIA is consulting with Professor Andrew Lloyd and the UNSW fatigue clinic on ME/CFS patients on granting access to the scheme

PROOF that the NDIA is forcing ME/CFS to undertake abusive GET/CBT treatment in their own words "The Agency is currently asking potential participants with ME/CFS to provide evidence of undertaking GET and CBT to assist with making a decision about the permanence of the condition"

PROOF that the NDIA LIED to us when they said "the NDIA has NO written record of the standards used for assessment (including what treatments are required to be considered "fully treated, diagnosed and/stabilised") and that there was "NO evidence by the agency for any medical consultation was undertaken to establish standards or documents for ME and CFS patients.”

PROOF the NDIA asked professor Llyod a schedule of fees for consultation, this brings into question why was this not availible for public tender?, why only one "expert" opinion was sought and is this a potential conflict of interest for professor Lloyds position on the NHMRC board? as he stated to that board that he “Provided UNFUNDED expert advice to the National Disability Insurance Scheme (NDIS) on processes for assessment of applications to the scheme from patients with ME/CFS”.

PROOF Professor Llyod and the UNSW fatigue clinic was directly asking the NDIA to provide funding for research projects and a project to develop an educational tool that the agency could use to approve or deny ME/CFS patients access to the scheme. In my opinion one of these projects that Prof Lloyd was seeking funding for would have given the UNSW fatigue clinic a monopoly on ME/CFS patients seeking disability and return to work (RTW) assessments so patients could qualifiy for things such as NDIS, DSP, and TPD (one of the research projects was quoted at almost $100,000 AUD)

Professor Lloyd also admitted to providing "expert" opinion for Centrelink, and a “number” of insurance schemes (particularly income insurance).

The "evidence" he provided to the agency was:
mostly his own or other PACE authors studies which he failed to mention have not been maintained by their author teams (some being over 17 years old at the time) and were published before the mandatory use of grade methodology.
provided a report that recommended that the condition should be considered permanent after 5 years that "most patients" recover after 1 year
suggested GET and CBT are “the best available evidence based management” despite biomedial research to the contrary
quoted the old NICE guidelines which he also failed to mention at the time were under review, and have now been updated to remove GET/CBT as "evidence based treatments"
The Cochrane Collaboration which now open questions the evidence and scientific validity of GET/CBT being effective
Yet admitted that the UNSW fatigue clinic recorded "only a substantial minority of patients had any significant improvement in severity/functional capacity" from the clinics treatment
A final report on the 20th Feb 2018 which we are awaiting the FOI for
 
So our next steps are foi-ing the agency on how much was paid to Prof Lloyd and his clinic, his reports and futher interactions he had with the agency.

Referring this to the disability royal commission, parliamentary friends of ME/CFS and the Attorney General/audit office to see who approved the funding (if any), was a public servant involved? and if so who granted it?, was it offered via public competitive tender? and was it legal, transparent, value for money and evidence based? (if this sounds familiar you may remember the previous government were caught doing a similar thing with the barrier reef grants in the same year 2018)