💔 My MS Fight — A Message From My Heart

I wanted to take a moment to once again thank every single one of you who has signed, shared, and stood beside me in this fight — our fight — for fair and compassionate medical treatment here in British Columbia for those of us living with Multiple Sclerosis.

There truly are no words big enough to express what your support means to me, to my family, and to every person fighting this brutal disease.

This past Wednesday, I received confirmation of my final private insurance coverage for my infusion medication — and it hit me like a wave. Knowing it could be the last time… it broke me in ways I can’t describe.

A few days later, my 11-year-old son came into my room and asked quietly:

“What could happen to you if you don’t get that medicine anymore, Mom?”

Trying to stay strong, to keep my voice steady, I told him:

“I don’t know, buddy… but Mommy’s strong, and we’re going to fight to make sure I get it, okay?”

But the truth? I didn’t know how to answer him without letting my own fear spill out. I didn’t want to pass that fear onto him — yet I also knew that I might’ve just given him false hope. Still, it’s a hope I need him to hold onto, because I need it too.

When someone tells you, “Your medication must be working,” the thought of losing it is terrifying — to put it lightly.

I’ve always said:

I can handle needing a mobility aid.

I can handle the fatigue, the spasms, the pain, the shaky hands.

But please — let my medication protect my eyes.

My vision is my lifeline. I need to be able to see my children grow, to see them build their lives, to see them chase dreams and conquer whatever the world throws their way. That’s all I ask — that this disease spares my sight long enough for me to see their futures.

Multiple Sclerosis is not “one-size-fits-all.”

Every single one of us progresses differently — RRMS, PPMS, SPMS — each case is its own battle. Many of us need high-efficacy medications because our MS is aggressive and unrelenting.

So why, here in B.C., are we denied access to the very treatments that experts across Canada and around the world recommend as first-line therapies? Why are we forced to fall behind — waiting until damage is done before we’re “allowed” to fight back?

Our neurologists, our doctors, and we, the patients, deserve the right to choose what’s best for us. We already wake up not knowing what each day might take away — we shouldn’t also have to fight the system for a chance to live our lives fully.

Do I experience side effects after infusions? Yes.

But do those risks outweigh the risk of losing my vision forever? Not even close.

Because the true risk — the one that haunts me — is missing the moments that make life worth living:

My daughter’s art.

My son’s baseball games.

Graduations, weddings, laughter, life.

That’s the risk of being denied the treatment that’s kept my MS at bay.

We should not have to beg, plead, or be the exception to the rule. We deserve the same access, the same choices, and the same hope as everyone else in Canada.

Our lives matter.

Our quality of life matters.

And our voices deserve to be heard.

Please, continue to share my story. Continue to share the petition. Continue to fight with me — because this isn’t just about me.

It’s about every single one of us living with MS in British Columbia.

If you haven’t signed yet, please do.

If you’ve signed already, thank you — from the bottom of my heart.

Together, we can make change happen. 💪🧡