Petition updateRemove Citric Acid Monohydrate from Humira in the United StatesCitrate Free Pediatric Release begins this week!

Caity ChandlerAnchorage, AK, United States
May 1, 2018
Hello all of my warriors and warrior moms and dads. I just wanted to update you that AbbVie has stuck to their timeline and are actively releasing the citrate free version for pediatric use. Mrs. Haas had already left for the day so I did not have a chance to touch base with her but I did want you all to know that when speaking to the medical information team they state our pharmacies should be prepared for distribution of the new formula to patients beginning May 7th. I would do a couple of things: 1. Check in with your gastroenterologist and make sure they write a new script for the citrate free version. 2. Check in with your Humira ambassador to express your desire to and intent to switch over to the citrate free version. I just think it’s nice to keep them in the loop preceding their next check in phone call. 3. Call your pharmacy on May 7th and ask if they are prepared to ship.
I will keep you all posted with progress on our end. I intend to delay filling my daughter’s script until May 7 to make sure she gets the citrate free version.
I do want to share with you to NOT LOSE HOPE! My daughter was not responding to 20mg per kilo every other week. Her levels were within range but she just wasn’t responding. Her GI’s in two states suggested upping the dose to 40mg every two weeks and advised to give them one month at that dose. Immediately after Ashlynn’s injection yesterday I was able to tell her not only that the ouch free is coming but that her labs are normal. It’s been a nearly eleven month flare. We are ecstatic! This disease is so individual and treatments are so individual. My daughter has a pretty aggressive form that’s been quite severe in the past. I’m so beyond grateful that this medication is finally kicking in and working for her. The only elevated value was a CRP that was one point outside of normal range. This is HUGE! Never give up and keep trying to find what works.
I hope you all have a great rest of your week and I hope for remission, comfort, and healing for all of our fellow warriors.
So much love,
Caity
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