XYY SYNDROME - Is a chromosome disorder that only affects boys / men. 

This is not somthing that we screen for and is currently found in the statistics of 1 in 1000 male births. 

The grief that I am experiencing today as is my beautiful son who is now 14 1/2.

My continual attempts to seek help from the day he was born with a significant traumatic birth and continued attempts to support him medically as well as a whole child with education, health, wellness, mental health, social opportunities, developmental skills and emotional regulation has gone unrecognized and I've been challenged many times that infact it was ' my mental health under question, due to my high levels of concern for his decline and gaps becoming bigger before my eyes  ' not my sons own autonomy that needed seen, heard and recognized. 

Most young adults and young men are picked up and tested found to have xyy syndrome 'ONCE' they have become a ' menace ' , ' stigmatized ' or worst yet incarcerated AND this is not good enough by me at all. ABSOLUTELY UNACCEPTABLE. 

I seek to form a large community, a tribe, a village so together we are supported to hold our young boys and see them for their highest potential. Not be dismissed or overlooked. Not be deemed over the top for our inner knowing that our sons needs more and that their is a desire to get to the bottom if what will give our children opportunity, tools, resources, confidence, positive outcomes, independence, a voice and a bright future ! �

Guiding them and reminding our boys of their SUPER POWER not their ' DISORDER '. 

We are all innately born with gifts and my son is amazing.

He's been let down too many times and I've seen and born witness to this first hand experience of instead medical support in crisis - punitive and removal of my son from his family. My 14 year old boy handcuffed and arrested as he cried " Mommy, mommy help me " 

I am a big vision thinker and I know that my experience is most definitely not isolated so  from and amidst this dark and challenging time I choose to see purpose.

Jacob ( ironically his name at birth ) prior to diagnosis of XYY at 4 years of age with the  onset of sudden seizures and life support - helicoptered to Starship Hospital we have had no information other than a geneticist appointment informing us of his diagnosis of XYY.

I have taught myself everything I know.

I have relied on intuition led heart space parenting. I have fought professionals telling me there was nothing they could do to support my son.

Its been 2 months now that our whole life changed as a family.

From all of this comes MY non negotiable - THIS NEEDS CHANGED. 

Jacobs is registered with the rare chromosome disorders website which I did a number of years ago and they too are trying to research for our children. 

It takes a village AND we NEED a village.

LETS LINK ARMS and CREATE change for our sons. The Future Leaders of tomorrow, Our World. �

Our creative minded, one shoe doesn't fit everyone boys and advocate for them. 

I'm leading the way and I won't back down. I need a tribe to join alongside of me but nothing will stop me, I'll go this alone. 

Join me as I share more on A GLOBAL SCALE OF IMPACT NOT SEEN BEFORE.

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Neurodiversity is my passion and commitment - the narrative that our World � perceives needs new pioneers. �

Tarryn Osborne - FIERCE MUMMA of Jacob and his sisters x 

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