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Newborn Screening
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Add Niemann Pick Disease Type A, B, and C to the Virginia Newborn Screening Panel
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Get Spinal Muscular Atrophy put on the Newborn Screening in Alabama
Nominate congenital cytomegalovirus (CMV) for uniform newborn screening
3 supporters are talking about petitions related to Newborn Screening!
I worked in newborn screening for 25 years and know how important it is to save lives. All disorders are treatable. If you value children and want them to grow into productive adults, then please continue this committee.
As a NICU nurse, I see the thousands of real lives that these newborn screenings impact. When a disease is caught early, treatment makes a huge difference for that child and their family. This committee steers the future of the screening tests, which means we continue to expand the ability of this early testing to help infants and families.
My five month old daughter was born with severe congenital hypothyroidism, which would have led to irreversible cognitive and physical developmental problems with even a few weeks of delayed treatment. Thanks to the newborn screening, it was identified quickly and she started treatment at four days old, all but ensuring that she will have a normal life. Every day I am grateful that this test exists and that we were able to give our daughter the best possible future because of it. There is no good reason that a baby should suffer brain damage from a condition that could have easily been prevented by an inexpensive blood test and early intervention.
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