Cystic Fibrosis Awareness

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Topics related to Cystic Fibrosis Awareness

Mental HealthHealthHealth and SafetyCystic FibrosisOrkambiVertexMental Health Funding

Stories and updates from petition starters

Increase Mental Health Support for Patients with Cystic Fibrosis to Meet Standards of Care
You are never alone, 1500 plus people have signed the petition!!Ive been blown away by the support for this petition. Some great ideas have come from it and hopefully people power can help make …
4 June 2018
Help Get Orkambi A Life Saving Drug For Cystic Fibrosis Listed On The PBS In Australia !!!
PBAC to decide on Orkambi at November 2016 meeting.The PBAC will this month decide whether to include Orkambi to the PBS. Over 1000 young Australians are waiting for access so they …
1 November 2016
Help Get Orkambi A Life Saving Drug For Cystic Fibrosis Listed On The PBS In Australia !!!
Submissions for Orkambi close October 05, 2016.With only 5 days to go until submissions close to have Orkambi listed on the PBS we need to share the link and get your family, fr…
29 September 2016

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