Victoria Hay-MackenzieCairns, Australia
Nov 28, 2025

Thank you so much to everyone who has signed, shared, and supported this petition. Reaching over 1,000 signatures is an incredible milestone, and I’m truly grateful for every single person who has helped champion this cause.

The call to action for research funding that was submitted remains under consideration with the NHMRC. While no outcome has been decided yet, your continued support highlights just how important this research is and why funding is urgently needed.

Please keep sharing the petition far and wide. Every signature strengthens our collective voice and pushes this issue closer to the attention it deserves. With that said, if you haven’t already shared this topic on social media—or even passed it on to a friend I kindly ask that you do!

The more exposure this topic receives, the more support it will gain. Collectively, we can strengthen the push not only for the medical research and advancements needed, but for broader public awareness of this condition. Increasing awareness alone can help those suffering access the right support — making it more than worthy of a simple share.

Thank you again — I am so grateful for all your continued support, it truly means a lot.

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