Actualización de la peticiónUrgent Reform Of Diagnostic Framework to Include PANS/PANDAS For Young Australians!A submission to the National Health Medical Research Council has been sent
Victoria Hay-MackenzieCairns, Australia
19 sept 2025

Firstly, thank you for your support. I am pleased to share that action has now been taken, with a formal submission to the NHMRC under the public submissions call to Targeted Research Priorities.

The portal process was challenging due to strict word and character limits, so my full hypothesis could not be detailed in the online submission. To ensure the proposal was fully captured, the complete document has also been emailed directly to the NHMRC office.

For those interested, the online submission can be reviewed hereonline submission

This is an important step forward, with the proposal highlighting the need to recognise Group A Streptococcus (Strep A) as a chronic disease driver and to improve guidelines and health system responses for the benefit of all Australians.

Thank you to everyone who has supported this cause — your awareness and backing are invaluable. Please continue to share the petition, as there is real strength in numbers when advocating for meaningful change.

With gratitude,

Vicki.

 

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