
Dear Supporter
Firstly we want to thank you, as always, for your continued support of our Campaign and it’s work. We continually daily to highlight the importance of #alwayscarrytwo and this is reflected through our social media presence on Instagram, Facebook and Twitter. Please do give us a follow.
Behind the scene we continue to gather evidence indicating to the BSACI the importance of needing to have an allergy policy that falls inline with not only the MHRA but the EMA and from what we can see the majority of worldwide policy. How much confusion can one set of guidelines cause? The answer is sadly a lot. Many worrying reports stemming from BSACI recommended ‘ risk assessments ‘ now telling patients (that have been referred due to previous Food reactions) that they WILL NOT be obtaining an AAI unless ANAPHYLAXIS occurs. It beggers belief but sadly very true that patients are being told this, tallying with BSACI 2,1 or ‘ 0’ recommendation. How can someone wait until after to receive rhe medicine required to save their life?
@campaign42AAI wrote to the Board of the BSACI on the 16th July, we have yet , despite another follow up enquiry, received a response. We asked that they respond directly to us as a established Campaign group, rather than through a charity that has been less than pro active with our concerns, clearly this has become to much of a challenge not to use their go betweens. We will continue to contact them on behalf of the 52,550 supporters we have to our Campaign.
We were rather offended to be challenged by an Allergy Charity who accused us of taking screenshots of a closed group forum to share on the Campaign page. This was completely inaccurate and we would like to stress we only share personal accounts with full written permission, which is what we had been given for this particular share. It would have been nice for the charity to have checked their facts first with the original poster but we move on with our heads held high.
Finally and most importantly we are considering developing our Facebook page and eventually having a webpage. We address a lot of current issues including the present UK shortages of all three Adrenaline pen brands and have spoken directly to the manufacturers regarding their shortages, we have statements you can view on our Facebook page. Please give us a follow.
Have a safe summer folks, do please give the petition another share, our aim is to reach 55k supporters by Christmas 2018 and do remember to #alwayscarrytwo
@campaign42AAI