We believe that Karina's quality of life and possibly her life itself, rests on this decision.
Karina has a complex illness that is severe, which is clearly evidenced by her symptoms and quality of life.
We also believe that with inappropriate treatment for severely ill patients with ME, this could be fatal. As was the famous case of Sophia Mirza, who was unfortunately in similar circumstances to Karina.
We are concerned that if this opportunity is not seized for Karina to see these experts, then she might suffer a similar fate.
The European Consultation on the Rights of Patients clearly state that Karina is entitled to refuse treatment, the right to change healthcare providers, the right to enjoy family support during treatment and the right to "thorough, just, effective and prompt" attention to complaints. These rights are being ignored.
Karina very clearly made her wishes known prior to being taken from her home on February 12th 2013.
Karina said NO to GET (Graded Exercise Therapy) and CBT (Cognitive Behavioural Therapy)!
Karina said NO to treatment by Nils Balle Christensen!
Karina chose her parents to have power of attorney!
Karina is being ignored.
We are asking you to sign this petition to make sure that Karina's rights are respected and listened too.
We know Karina is severely ill and all we are asking is for the best for her health and well being.
Now is the time to stand together in unity to ask for a second opinion to be granted by a leading ME Expert.
Help us make this happen for Karina by signing the petition and sharing. Together our voice will be heard for Karina!
Please read this article for more in depth information: http://justiceforkarina.webs.com/apps/blog/show/41293572-karina-hansen-deserves-a-second-opinion-by-an-me-expert-
A copy of the open letter sent to Karina Hansen's guardian:
Dear Guardian :
We are writing to you out of concern for Karina Hansen. We understand you have been appointed guardian to Karina Hansen and that her parents have written to you requesting she be allowed to have a second opinion provided by an international ME expert, Dr. Nigel Speight. We are respectfully requesting that you allow Karina Hansen to be seen by this expert in a timely matter. We believe this young woman's quality of life, and possibly her life itself, rests on this decision.
We understand that being appointed guardian of someone with such a complex illness can be a difficult task. We have taken the time to research some matters which are relevant to this situation and might be of use to you as you make this decision.
1. Karina has the right to a second opinion. We understand that in Denmark this right to a second opinion is applied in cases that are severe or life threatening. We know that Karina's case is severe as clearly evidenced by her symptoms and quality of life. (To learn more about severe ME please visit http://www.stonebird.co.uk/symptoms.html ) We also believe it is life threatening. Sophia Mirza is one example of someone who died from ME after inappropriate treatment. You can learn about her at http://www.sophiaandme.org.uk/ . We are very much afraid that if you do not seize this opportunity to have Karina seen by these experts that Karina might suffer a similar fate.
You can read about rights to a second opinion at http://www.who.int/entity/genomics/public/eu_declaration1994.pdf?ua=1 and at http://books.google.com/books?id=iDa_qL--W_oC&pg=PA64&lpg=PA64&dq=Denmark+patient+rights+second+opinion&source=bl&ots=yMxoL6ihEp&sig=AOnN0vIkEDHE3rcHeONNW8Olhek&hl=en&sa=X&ei=wVPtUrH1FpTYyQGmoIDIDQ&ved=0CEcQ6AEwAg#v=onepage&q=Denmark patient rights second opinion&f=true
2. We have researched more about Karina's rights as a member of the European Union and we would like to share this information with you. The European Consultation on the Rights of Patients, whose purpose was to define principles and strategies for promoting the rights of patients, provides an excellent point of reference to understand Karina's rights. Especially applicable to Karina's case are the right to refuse treatment, the right to change healthcare providers, the right to enjoy the support of family during treatment, and the right to "thorough, just, effective and prompt" attention to complaints. All of these rights are listed at http://www.who.int/entity/genomics/public/eu_declaration1994.pdf?ua=1 .
3. Another guiding principle that helped set these important healthcare laws says that decisions made for the patient should take into account "what is known and, to the greatest extent possible, what may be presumed about the wishes of the patient." (Declaration on the Promotion of Patients' Rights in Europe) Karina very clearly made her wishes known prior to being taken from her home on February 12, 2013. She said no to GET (graded exercise therapy) and CBT (cognitive behavioral therapy). She also said no to treatment by Nils Balle Christensen. Karina chose her parents to have her power of attorney. Please listen to what they have to say about their daughter's wishes.
We are a group of people from different countries that came together to ensure that Karina's rights are being respected. We are nonpartisan and have no reason to want anything but what is best for Karina's health. We are making this letter public and we will also share the letter written to you by Karina Hansen's parents (with their full permission).
We request that you take all of these guidelines into consideration and as Karina's state- appointed guardian please make sure that her human rights are being respected.
the managers of Justice for Karina Hansen