Include Hemophilia in to RSBY www.rsby.gov.in

Include Hemophilia in to RSBY www.rsby.gov.in

The Issue

Hemophilia is a medical condition in which the ability of the blood to clot is severely reduced, causing the sufferer to bleed severely from even a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor, most often factor VIII

       I request the Honorable Prime Minister Mr. Narendra Modi   to include Hemophilia disease in to RSBY scheme.

In 20th September 2012 a medical student Yashraj Gupta died   a month after the Bombay High Court issued a notice to the state after a Public Interest Litigation (PIL) was filed by four patients — Vinay Nair, Rupal Panchal, Sunil Jadhav and Selvin Furtardo — suffering from hemophilia, urging the government to provide them free medical aid under a scheme caught in bureaucratic procedure. – See more at: http://www.mid-day.com/articles/hc-order-comes-a-month-late-for-student-with-haemophilia/186201#sthash.J4tMgTkp.dpu

As everybody know this Factors are very costly. We are middle class people can’t afford all the time. If we have RSBY Card 30000/- insurance facility we may use in emergency accidents.

 This not only one of our brother died, they are many brothers & sisters in our surroundings. To help all my Hemophilia brothers & sisters kindly sign my petition.

Aamir Khan ji, has highlighting many sensitive social issues on his show Satyamev Jayate. If he can highlight the plight of Hemophilia Disease, it would possibly help in saving thousands of lives.

I have personally emailed satyamevjayate@akpfilms.com and requested them to take up this issue. However, one email alone may not be enough. But if we all come together and raise our voices, we can bring change.

 Your signature would be a small step towards making this change. I request you to sign this petition and ask your friends to sign it to get the maximum number of signatures. We can combat this issue with a strong voice and ask Aamir Khan to take it up.

avatar of the starter
Lohith BVPetition Starter
This petition had 275 supporters

The Issue

Hemophilia is a medical condition in which the ability of the blood to clot is severely reduced, causing the sufferer to bleed severely from even a slight injury. The condition is typically caused by a hereditary lack of a coagulation factor, most often factor VIII

       I request the Honorable Prime Minister Mr. Narendra Modi   to include Hemophilia disease in to RSBY scheme.

In 20th September 2012 a medical student Yashraj Gupta died   a month after the Bombay High Court issued a notice to the state after a Public Interest Litigation (PIL) was filed by four patients — Vinay Nair, Rupal Panchal, Sunil Jadhav and Selvin Furtardo — suffering from hemophilia, urging the government to provide them free medical aid under a scheme caught in bureaucratic procedure. – See more at: http://www.mid-day.com/articles/hc-order-comes-a-month-late-for-student-with-haemophilia/186201#sthash.J4tMgTkp.dpu

As everybody know this Factors are very costly. We are middle class people can’t afford all the time. If we have RSBY Card 30000/- insurance facility we may use in emergency accidents.

 This not only one of our brother died, they are many brothers & sisters in our surroundings. To help all my Hemophilia brothers & sisters kindly sign my petition.

Aamir Khan ji, has highlighting many sensitive social issues on his show Satyamev Jayate. If he can highlight the plight of Hemophilia Disease, it would possibly help in saving thousands of lives.

I have personally emailed satyamevjayate@akpfilms.com and requested them to take up this issue. However, one email alone may not be enough. But if we all come together and raise our voices, we can bring change.

 Your signature would be a small step towards making this change. I request you to sign this petition and ask your friends to sign it to get the maximum number of signatures. We can combat this issue with a strong voice and ask Aamir Khan to take it up.

avatar of the starter
Lohith BVPetition Starter

The Decision Makers

S S Roychoudhury (CEO)
S S Roychoudhury (CEO)
Hemophilia Federation of India
Responded
Respected Pradhan Mantriji, I am a retired AF Officer associated with the cause of People sufferingf with Hemophilia (PWH) for last 6 yrs. I am pained to see that they are deprived from any Insurance Coverage. They are not even included in the Benchmark Disabilities Category. The treatment is so expensive that it is beyond the means of even middle class or upper middle class. So where does the people below the poverty line go. Incidentally Hemophilia Federation (India) is struggling to save the lives of these hapless sufferers. Our humble request to you in bring them under RSBY so that they can atleast get some relief from physical trauma if not emotional. To know us more kindly visit our website www,hemophilia in.
Shree Mr.Narendra Modi
Shree Mr.Narendra Modi
Honorable Prime Minister
Mr. Aamir Khan
Mr. Aamir Khan
Satyamev Jayate
Shri Jagat Prakash Nadda
Shri Jagat Prakash Nadda
Union Minister for Health and Family Welfare

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Petition created on 27 October 2014