Save Alice Barrett life

The Issue

Please sign this petition to help try and save Alice Barrett's life. She is 25 years old and has very Severe Myalgic Encephalomyelitis (ME). She is currently in hospital.

The Trust's guidelines state that you have to be at least 30 degrees for NG tube feeding. They have now adapted their guidlines which should help Alice tolerate being feed.

Hopefully, the feeding plan we have now got in place Alice will be able to tolerate and she will become nutritionally stronger.

Thank you to everyone who has signed and shared the petition. It is really important to raise awareness of the challenges people face with ME, it is so obvious from reading the comments that it is all too common. We would like to keep the petition going to continue to raise awareness of ME, the need to educate and invest more money into research.  

Thank you,

Rosie (Alice's sister) and on the behalf of Alice and our family 

 

22,746

The Issue

Please sign this petition to help try and save Alice Barrett's life. She is 25 years old and has very Severe Myalgic Encephalomyelitis (ME). She is currently in hospital.

The Trust's guidelines state that you have to be at least 30 degrees for NG tube feeding. They have now adapted their guidlines which should help Alice tolerate being feed.

Hopefully, the feeding plan we have now got in place Alice will be able to tolerate and she will become nutritionally stronger.

Thank you to everyone who has signed and shared the petition. It is really important to raise awareness of the challenges people face with ME, it is so obvious from reading the comments that it is all too common. We would like to keep the petition going to continue to raise awareness of ME, the need to educate and invest more money into research.  

Thank you,

Rosie (Alice's sister) and on the behalf of Alice and our family 

 

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Petition created on 23 February 2023