i am signing this petition  for the help from the Govt to raise the fund for little child below is story to know much better.

Respected PM sir  modiji please extend your kind heart support to save the little baby .

Dhairyarajsinh's Condition.

My name is Rajdipsinh and I am raising funds for my 3-month-old who is battling a Rare Genetic Disorder, called Spinal Muscular Atrophy type I. In this disorder, my son's Nervous system is affected. He will not make it past 2 years of age, as a parent that is like a curse for us. The only way he could survive is if we could Import a Drug called "Zolgensma" which costs Rs.16,00,00,000 if we could sell everything and exhaust our savings then also we would not be able to afford it.what is Spinal Muscular Atrophy Type 1 (SMA)?

It is a genetic disease affecting the entire nervous system, peripheral nervous system, and hence voluntary muscle movement. Maximum nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease.

WHAT YOU CAN DO TO HELP

Donate money: Please donate whatever you can spare. Every donation will count towards saving Dhairyarajsinh's and giving him a chance at living a good and fulfilling life. Alone the parents cannot bear to save little Rehash but together it is not impossible. The times are hard for everyone. Even sharing this story on social media will play an important role.
Contribute your time. We are in for the long haul in our fight against this deadly disease. The best course of action is to raise awareness and get the necessary infrastructure set up in India. Only time and continuous lobbying will contribute to long-lasting change.
Spread the word. Healthy parents could have a genetically affected baby. Genetic testing is in a nascent state in India, with limited labs and clinics available for diagnosis. Tell others about genetic testing, so this becomes a common practice as it is in most western countries like the USA and Canada, where genetic screening is part of post-natal care.

You can follow Baby Dhairyarajsinh on-

Instagram: 

username: dhairya_fights_sma1

URL: https://instagram.com/dhairya_fights_sma1?igshid=lrb58jxqp52c

Twitter:

Username: @SmaFights

URL: https://twitter.com/SmaFights?s=20