Maggie DeaconStow on the Wold, ENG, United Kingdom
Mar 22, 2018
Thank you to each and every one of you who wrote an email to your MP asking them to visit us this morning in London. We had a huge cross party turn out which was amazing and so much support and common sense being spoken. We took the petition to Number Ten Downing Street at 2:30 today and we were surprised to be invited in! We met with Sir Mike Penning, Minister Hurd and the Prime Minister came to see Alfie and assured us we would find a resolution with Minister Hurd. We have now been told that if our doctor applies for a license on compassionate grounds that they will expedite the process as quickly as possible. They can not assure us of the outcome which is frustrating but legally they can’t however we hope very much so that the outcome will be favourable as we have so much influential support now and also proven by doing the trial in Holland that Alfie needs this medicine desperately. Thank you so much for your support. We still need to keep the pressure up until we actually get this license but we have moved closer to our goal today. Please keep sharing our petition far and wide! Much love
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