Petition update

Still Here, Still Hopeful

Julia Rose
United States

Jul 24, 2020 — 

Hello, everyone,

It's been a while since I've written anything on this page. So much has changed for so many of us, and yet, some things have stayed the same. COVID-19 has shaken our livelihoods. That is undeniable.

I didn't know it'd be anything like this. Did any of us, really? I hoped for the best, and I still do every day. I am trying my best to live in the present and seize what good I can.

I can only speak to how it has affected me as an individual. I cannot understand how it affects you, though I am open and care about your wellbeing. I have certainly had my share of anxiety throughout this. Still, the insulin affordability crisis remains an issue among everything we're facing today. Type 1 diabetes never stops. We know that. As people have lost their jobs due to COVID-19, faults in our healthcare system have become even clearer to the public eye. Even with insurance, COVID-19 doctor bills can burn.

People with type 1 diabetes know, perhaps more than most, that the lifesaving supplies we need every day, though manufactured at a much lesser cost, comes at a much greater one in every sense of the word. Solutions may not come with just one appointment. You may require more visits, more trials and errors with medicine, more support... COVID-19 has shifted the conversation and more Americans are suffering from the great costs of this pandemic. The pandemic has overwhelmed 2020. This is not how we wanted to bring our picture to light, but the point is being made - the cost of healthcare across the United States for a variety of conditions is too much. 

While insulin manufacturers and diabetic supply companies have lowered prices and created affordability programs in the wake of COVID-19, my goal is to ensure they are not bandaid solutions for this community. How do we do this? I hope that together we can continue to be brave and share our stories and struggles so that we can make the differences we want to see.

We need sustainable solutions in terms of cost and coverage. That has not changed in the wake of COVID-19, despite more urgent issues taking a necessary spotlight.

COVID-19 has made it abundantly clear that our healthcare system must change. Healthcare workers need more support. People need access to affordable healthcare. And disease does not discriminate. Our health shouldn't be so far out of reach, no matter who we identify as.  

We can do better than today. Though I haven't shared an update on this page in a while, please know that I am not giving up as an advocate of this community and I hope you aren't either. We are capable of finding hope amid difficulty. I believe in this community. 

More than anything, I hope you are taking care of yourself and your family. I hope you are well, and if you have contracted the virus, I hope more than anything that you are on the path of recovery.

Life is fragile. I respect the time I have and hope to make the most of it. Please keep sharing insulin affordability insights with your networks. There is so much negativity in the world, so let's make the effort to focus our messaging on what good changing our healthcare system will do for all. There is a lot of good to be done, and I know there are many good people who support access to affordable healthcare for all. 

For many of us, that thought starts with insulin access and affordability. Wherever you begin, begin in this place of hope. Don't lose it. We can still do this. 

There is so much strength in hope. We are stronger than the darkest times. Together, we can affect positive change.

Take care, Julia

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