Petition updateOutdated and Unfair: Call for an IVF Policy Revolution and End BMI-Based Discrimination🌿 Campaign Update: A Quiet Week, A Loud Heart
Grace HowellsUnited Kingdom
Aug 16, 2025

Hi everyone 💚

 

I’ve been a little quiet this week, and I wanted to share why—because this campaign is rooted in honesty, community, and the real emotional terrain of fertility care.

 

Earlier the week before, I began experiencing heart palpitations and tachycardia, likely side effects from letrozole. It was frightening and destabilizing. I reached out to my fertility team for guidance, but unfortunately, I struggled to get the support I needed. Despite multiple calls and messages, I was met with silence.

 

Thankfully, my GP surgery has been incredible. They saw me quickly, ran bloods and an ECG, and reassured me with normal results. Their care gave me hope that I might continue with my letrozole cycles.

 

But then came an unexpected call—from someone linked to our consultant—advising me to stop the medication. It was crushing. I had a good cry. It’s heart-wrenching to feel like you’re starting over again.

 

This week has also brought deeper reflection. My partner and I haven’t had the best experience with NHS fertility services so far. As someone who works within the NHS, that truth cuts deep. Our GP is fighting our corner and has referred us to a different area, but because it crosses county lines, it may not be accepted. We’re now weighing up going private to avoid further stress.

 

I’ve even submitted a formal complaint to PALS. Communication breakdowns, lack of empathy, and poor follow-up have made an already emotional journey feel even heavier. I won’t share the full email here, but it includes examples like:

 

- A missed semen analysis result that only got chased thanks to my GP receptionist.

- An appointment I wasn’t informed about, where I was told my BMI was too high for IVF—with no compassion, no support, and no understanding of PCOS.

- Eleven attempts to reach the CRM nurses line this week, with no call back until the very end of the day—and even then, I was brushed off and given the incorrect medical advice.

 

I’m sharing this not to dwell in frustration, but to show why this campaign matters. BMI-based IVF restrictions don’t just block access—they compound trauma. They silence nuance. They ignore the lived realities of people with PCOS, metabolic challenges, and emotional vulnerability.

 

So yes, it’s been a quiet week on the outside. But inside, it’s been loud. And I’m still here. Still fighting. Still grateful for every signature, every share, every message of support.

 

Thank you for walking this path with me. 💚

 

#womenshealth #FertilityEquity #PCOSAwareness #IVFForAll #BMIDiscrimination #LetrozoleJourney #CompassionInCare

 

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