Kampanya güncellemesiOpposing MEGA2,600 Professionals and Patients are Opposing MEGA
Opposing MEGALondon, ENG, Birleşik Krallık
11 Kas 2016
The Irish M.E. Trust is the latest patient organisation to join us in Opposing MEGA. In their newsletter this week - "The Irish ME Trust has no hesitation in supporting the objection to MEGA not only because of who it involves but also because they will be using the NHS clinics to get research participants using a broad fatigue marker rather than the CCC or ICC. In addition they will not be recruiting any severe ME people because these people do not present to the CFS clinics in the UK, many having been either harmed by them or dismissed from them because they have nothing to offer. The concern is here that the research pool will once again be so diluted that any findings will at best be worthless or at worst will 'prove' the case for ME being a psychological illness with no consistent biomarkers". Sign our petition Opposing MEGA here - change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs Visit the Irish M.E. Trust online here - www.imet.ie/ The MEGA petition closed on 2nd November (currently showing 2,545 signatures). Our Opposing MEGA counter-petition passed that number this week and remains open. Congratulations to everyone willing to speak out and be counted at this crucial stage in the history of recognition, research and treatment of this disease. As we said in our last update, MEGA is merely moving to a new online platform and still plans to apply for mainstream research funds showing public/patient support by the number of signatures to their petition. We simply cannot afford to condone further funding to justify a Bio-Psycho-Social (BPS) movement that places vested financial and career interests above public health and patient safety. Thanks to all for your support by signing and sharing Opposing MEGA - https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
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