Nov 6, 2016
An excellent new piece has been published by UK charity Invest in ME Research - http://www.investinme.org/IIME-Newslet-1611-01.shtml
It begins -
"The latest extensive and biased media coverage given to the biopsychosocial (BPS) lobby has been prominent, not for providing anything new – it is always all the same. What is new is the way that these protagonists for the BPS lobby are now beginning to sprinkle their language with 'biological' and 'biomedical' – and attempting to morph into something more acceptable to ME patients who have criticised the dead-end approach of UK research in the last generation.
This REINVENTION doesn’t fool anyone but the most naïve.
When the MEGA study (M.E./CFS Epidemiology and Genomics Alliance) was announced by the CMRC collaborative some people wished to believe that a change had occurred - that, after a lifetime of wasted opportunity, where the PACE trial had eventually been pulled apart and shown to be the flawed and tawdry #nullfield research that it is, then a new age of research would begin where patients could begin to trust what was being put forward.
This was despite the misgivings about the MEGA project from some patients who were street-wise to the machinations of those influencing research policy, as detailed in the OMEGA petition [1]. IiMER expressed our views [2].
The recent days’ orchestrated media blitz about another doubtful research project called FITNET-NHS (Fatigue In Teenagers on the interNET) [3], led by Professor Esther Crawley at Bristol University, has surely put the final nail in the coffin of any hope of rational science and clear vision from the Science Media Centre-assisted forces who paint ME to be an illness maintained by the young person’s behaviour which can be corrected via CBT, GET or even a pyramid business dressed up to be a treatment."
Read the full article here -
http://www.investinme.org/IIME-Newslet-1611-01.shtml
The full support of the UK Science Media Centre for the CFS/ME Research Collaborative (CMRC) bio-psycho-social agenda, and their willingness to cast patients as villains beggars belief really. It sounds more like Science Fiction, and people pointing out such collusion are often labelled 'conspiracy theorists', but there's no secrecy about it, here it is in their own words in their 3-year report published in 2013, the year the CMRC (the latest incarnation of MRC ME/CFS Expert Group) was formed. There are several references throughout - http://www.sciencemediacentre.org/wp-content/uploads/2013/03/Review-of-the-first-three-years-of-the-mental-health-research-function-at-the-Science-Media-Centre.pdf
Time to end this travesty of science and decency.
Sign the Opposing MEGA counter-petition here -
https://www.change.org/p/opposing-mega-a-vote-of-no-confidence-in-mega-research-for-me-cfs
Please keep sharing to help raise awareness of what's really going on in UK behind the headlines of mainstream media. Thank you.
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