We Can Do This! We Can Win This!
If We Work Together....
Please Help Stop the Unesscary Suffering of Chronic Pain Paitents. Sign & Share the Parliamentary Petition
https://petition.parliament.uk/petitions/596304
Thank you to the Online Magazine 'Uncomfortable Revolution' for publishing my article on the campaign.
https://www.urevolution.com/nice-guidance-on-chronic-primary-pain/
Our Information Commissioner Case Worker has Informed me that NICE has requested an extension. Extension has been granted - 6th December. We are able to access some of the references that were used in the decision making. Yet, we are unable to access the majority to complete an independent anyalysis of the evidence. We are asking for the unpublished medical journals and the highly expensive medical journals (In total) that were used.
Lucy webster is a brilliant disability journalist at The Guardian and other media sources. Lucy explains that she will write an article for us when we reach Ten Thousand Signatures (We recieve a government response at this stage). This will make a huge difference for the campaign/chronic pain paitents.
Thank you to those who are involved in 'The Faces Behind Chronic Pain' social media project. Videos by Robin kindly created our first fantastic campaign video and I am hoping to ask Robin to create our second campaign video when this project grows (with the hope of raising awareness and gaining more signatures).
If you would like to get involved contact me via Instagram @clairebearmelmel or claireswain19@outlook.com
Steve at the Canary Newspaper informed me that he is still kindly writing an investigative article for the campaign. He wrote a fantastic article for the previous M.E battle with NICE.
Would you consider contacting your local Newspaper on behalf of the campaign? If yes let me know and I will support you through the process.
17th December - Next Committee Zoom Meeting. Even if you do not want to be a long term member. Please come a long share your ideas and thoughts.
We only have till the 3rd March 2022 to get One Hundred Thousand Signatures (Parliamentary petition not change)
#ChronicPainisNotNICE