When you signed this petition, you stood with millions of patients demanding recognition.
That recognition has just laid a foundation.
For the first time in U.S. history, the FY26 Appropriations Report includes official language urginf the NIH to recognize endometriosis as a chronic, systemic inflammatory disease. Not just a reproductive condition.
This wasn't done by lobbyists. It wasn't done by institutions with million-dollar budgets.
It was done by patients.
Advocates showed up while navigating their own surgeries, flares, and daily battles with a broken system. Then helped change federal health policy.
https://theinvisiblevoice.squarespace.com/writersroom/historicfirstforendo
This language will influence:
- NIH funding priorities for endometriosis research
- Medical training and education for future providers
- Future policy and legislative efforts at federal and state levels
This is the validation we've been fighting for. And it's proof that when patients organize, we win.
But, recognition without enforcement isn't enough.
We're continuing to push for:
- Full enforcement of the new federal language
- State-level adoption of the same classification
- ADA recognition with real penalties for violations
- Mandatory medical education reform to replace outdated theories
Your signature helped get us here. Now we need you to share this update and bring more voices into the fight.
How You Can Help Right Now
Share this petition — More signatures = more pressure on lawmakers
Share the news — Post about the federal language win and tag your representatives
Show up locally — Rallies and advocacy events are happening across the country
We're not done. But we're proving that change is possible.
We have an online Advocacy Workshop taking place Feb 24th at 5pm PST. We hope you can join us! More dates to come for future workshops.
💛 Thank you for being part of this. Together We Can.
Chelsea Hardesty- Denver, CO
(c) 740-901-1431 (e) betterofendo@yahoo.com
Founder of Getting the Better of Endometriosis
Research Assistant & Colorado Rep. for Worldwide EndoMarch
USA CEO & Ambassador Manager for SATIREV Projects
Congressional Outreach & Patient Advocate Delegate for
The American End of Endo Project