Today began week 5 of classes for Kayne

Hello family and friends. Since my last update, we had hurricane Irma roll through. We did have some damage to our balcony ceiling, fence and a few other things. The food in the freezer didn’t survive as well. All we must do is look at the damage in the Keys or Virgin Islands to realize we made it okay. Last Monday, Kayne attended all his classes. He has one extra class on Mondays so he goes until 330pm. After class, Kayne and his roommate Noah interviewed with Chris Ulmer with Special Books by Special Kids. Chris was in New Orleans speaking at an autism conference and had other business in Baton Rouge. It worked out well because in addition to the interview Monday, we were able to have dinner with the host family and Chris & Allyssa the next day. On Tuesday, Kayne had his second infusion. He did good and he wasn’t as tired and knocked out like he was during the last treatment because he only took a small dose of Benadryl before the treatment. Kayne had his first test on Wednesday and he spent a good amount of time studying for it. He had another full day of classes, but he was wiped out afterwards. Thank goodness for his down days. Thursday was a day of relaxing and rest for Kayne. Kayne and I played a game of Madden NFL on the Xbox and then had dinner at his dining hall. On Friday, Kayne was too exhausted physically to attend his classes. He ended up emailing his teachers to let them know he couldn’t make it to class. At that point, the goal was to rest so he could make it on Saturday to the museum for a class assignment. Kirsten and I brought dinner to him Friday evening and hung out with him. Kayne was up early and Kirsten helped get Dementor and Kayne ready for the Museum. Noah drove Kayne and Moose and brought him back afterwards. Kayne was going to watch the game with us at Derek and Angelle’s house Saturday night, but when we got there to pick him up he was out. He stayed and slept. On Sunday, I flew back home to Florida to take care of some of the damage at our home. Kayne had a good day. Kirsten was with him most of the day and she gave Moose his weekly bath. Kayne's continuing to have neuropathy and right side weakness (new issues just in the last 5-6 weeks) that seems to hang on more now than before even with the higher dosage of Gabapentin and Celebrex. We're doing what we can to make sure he is comfortable and not having any prolonged pain. He says the tingling in his arm and down his fingers are mostly annoying to him. It's like we've discussed before, freeze how it is right now and we'd adapt, handling it all, as is. Kayne's told me he can do without hearing and seeing that well and has adjusted. Losing mobility is the hardest and most crushing to deal with right now. Today was the beginning of week 5 for classes. Please keep praying for Kayne’s ability to attend his classes and functions as well as total healing. Even if you don’t have Facebook check out Kayne’s website at www.cannonballsforkayne.org You can see daily updates from Kirsten as well as events and more. Curtis Kayne’s father Curtis.finley@gmail.com