Again mdt cancelled!

HI all just update that once again mdt meeting cancelled and just 3 weeks until Luke turns 18yrs old.  Still no proper care plan in place and no respite in place for myself when he does turn 18yrs.  A pain dr refused to accept Luke is in pain simply because he was smiling; later that day ill in school again!  Another 5 weeks ago stated Luke needed an MRI scan within the next 4-6 weeks at the latest as all can see he is deteriorating yet still no scan date! On a positive note Luke excited about his party coming up for his 18th birthday where I want to celebrate my darling son.