Let down again but cheered up by Elvis!

So sent home from hospital being told will have mri as outpatient & ct scan is fine. However told London surgeon's team have said scan is fine yet when spoke directly with them they tell me haven't even had the scan!  Then yesterday Mri team haven't even had a referral! So we went to see the amaxing Emilio Santoro as Elvis Presley & Luke had a ball. Yesterday a good day but today had to see nurse in school again as in pain. What has to happen? Still social services not helping get carers either! Help! Wrlsh Assembly not helping & the Prime Minister's team responded down to Welsh Assembly; is there a United Kingdom or Great Britain? Pleae support Luke & I to remain a family at home with the care & support needed x