Latest !

So hi everyone thank you all for your support so far. Luke still isn't back in school yet after finding 4 new cysts on his brain last November and having 4 more brain surgeries last Sept. We still have hardly any support at home with Luke's health, mainly physical health getting worst and this leading to more challenging behaviour. Profs tell me they identify this yet still do not provide the support needed for me to keep Luke at home. This is something I feel even more determined to do after being told Luke will need more open brain surgery soon as 1 of the new cysts has grown big quickly. I have been told this will be more risky surgery. Please help me get the support I need in place to keep Luke at home x