Although this is not about the cameras specifically for disability vulnerable people in care and respite I could not ignore this man whose needs were ignored and his children who were both nonverbal teenagers with autism -
Where is the care or accountability by NDIS - no one checked if this man had food during the pandemic but he was dying of cancer and left his boys to run around and unfed probably because he could not help them - yet no one would help him...
We need social workers who really do contact people who are vulnerable on their own or sick and struggling to look after their special needs children/disabilities person...these boys could not even speak to ask for help and maybe this man didnt think he would get any help - For shame NDIS
Stuart Robert has so far ignored calls? for cameras, and caseworkers to help those in need who struggle on their own including the parents - this minster has a background in military, and armed defence - why is he in charge of Disabilities??? His last job was assistant treasurer for the government - he is also trained in money and technology.
There is no empathy or care in this NDIS organization at this present time we need to change this!
Autistic teens whose dad died
the recent article in the Australia Daily mail (28 May 2020) by Brittany chain - detailing autistic non verbal teenage boys locked in a room of a house wearing only nappies and in squalor as their father had died in the other room....it makes the father look bad but really the system is the problem here as no one even checked on him or cared....dear God it
is so tragic it begs belief a father dying of cancer a single parent trying to look after two severely affected Autistic teenage boys - struggling on his own
so that when he dies his boys are still locked in the house, because what else could he do since he was so sick? and probably could not cope sick? and probably could not cope
As all parents of special needs/disability children/teens/adults know these kids are full on demanding and you have to keep on your toes for everything to help them - therapy, doctors, pediatricians, physio, speech and on and on ...if you are sick
how can you cope with any of it?
and how can you fill out all the ndis forms or call them and get a non committal administration person who doesnt care about anything but relaying information to you and tells you to fill out this form and that form and get reports...
a man who is dying and sick with cancer is not up to it
I have talked to people since who do not have a disability child and have no comprehension of the stress of having just one who has many behaviour problems and or cannot talk and or is noisy...
imagine having two boys like this
of course this man could not cope
neighbours judge him perhaps "Tch Tch they say look how neglected his kids are...look he doesnt even dress them, or feed them properly..."
Did they bother to offer him help or call someone for him? He was dying for God's sake...
Where were the NDIS people to help? Didnt they notice someone was struggling of course not they are just a corporation wanting people to make money out of disabilities...make it a business thing...where are the people who help?
Why wasnt there a social worker, case worker or whatever else offered to help organise services for the boys and put them in a day programme or care or a respite house so this poor father could cope?
No instead we get judgement and gossip - but no compassion, no love, no reaching out - people judge and put parents down who are not coping
for shame Australia what is wrong with you?...
yes the neighbours talked about it and made complaints...
yes the government was told
where were the people to actually help? Where was the local church or christians? Oh thats right unless you go to their church you are not in the circle who cares or still doesnt care really.
When we let people suffer like this it shows the coldness and heartlessness of a people who will not help their neighbours but will talk about them and put them down when he was suffering...and needed help the most...
Be sure it will come back on those who turn their backs on someone in need. There was a reason for the "love your neighbour" deal = the human race only survives through caring for each other even those outside your click...you have to step outside your circle and reach out...like the good samaritan - someone who helps those who are not of their social circle....find ways to help
or one day
it could be me or you and no one will help when we are unable to help our children or ourselves.
We have to step up
We have to care...
or we are lost as a people
During the recent covirt crisis which continues now, and restrictions we as a society only got a taste of the stress that comes with having need...hence the hoarding so afraid are we of not being able to feed our children or ourselves or have somewhere to live...
While everyone in Australia was hoarding their food and toilet paper and trying to buy enough food to stock up for themselves in the pandemic, and fearful of their futures, wondering about losing jobs or houses - and others actually losing them and in distress...there was a taste of suffering...here was
A man who was barely coping with his two non verbal highly active autistic boys before was now dying and did anyone bother to ask him if he needed help to buy food for his boys - maybe thats why they had malnutrition - maybe he had no money for food, or was too sick to go to the shops... did anyone know if he was getting money from the NDIS to get respite for his boys, and help for himself - he should have been in palliative care and his boys in a place to be looked after while he was sick and dying...but no
did anyone check on him since all services and shops in Australia were shutting down - just like Ann Marie Smith recently as May who died in the middle of the pandemic virus - middle class society got a taste of suffering of isolation, and life without anyone there for you
but only a taste compare to those who were already isolated by disability, poor and in need and a woman who could not move had lost her parents and was alone all day and all night not being fed or bathed
Again this father of two autistic teenagers - suffereing and no one noticed a person dying and alone in the darkness wondering what to do about his boys...he had to lock the door to stop them running away and getting hurt or just to keep them contained. No one knows what its like to have full on noisy hyperactive non verbal autistic kids which you cannot control because you are too sick and no one will help you. How could we let a man suffer this way?
step away from the technology and reach out to the humanity around you...cant you see they are already dying...some even through suicide because they are losing hope
some because they cannot cope, some because they have lost jobs and their life they used to have and others because they are sick and they have children they need to take care of, yet no one steps in...
the government and its clever NDIS which is failing miserably and letting people die in great suffering isolated and alone,
needs to make provision for social workers to help people who are alone with no family friends or anyone to help them especially when they have disability children. Especially when they cannot do it for themselves.
We cannot let this keep going on. Instead of making it all about money it needs to be about caring also and helping people to what they need to cope...
Dont be so cruel and cold as to turn your back when you see a need...
Just because the government is comfortable and rich and fed and happy and having holidays
what about the poor sods trying to cope with disability children and not coping on their own - where is their holiday ? They need respite or they will get sick from the stress of trying to provide so much care on their own.
This poor man a neighbour noted used to dote on his boys when they were younger but seemed to longer be able to cope the last few years. Why didnt someone offer a hand? Instead of just talking about how he wasnt coping - Why didnt someone organize help for him?...
Dont ignore whats right under your nose... or it will happen to you one day, and none of us will survive. Evil rises when people refuse to do good, show kindness or step up to help...the darkness closes in and shuts the light out and there is no hope for any we need to think about it.
All the best
Anndrea x