Thank you for your continued amazing support 4 Jess and this petition. The signatures consistently grow and the messages expressing heartache at losing your precious family and friends in circumstances not dissimilar to Jess have prompted me to write to Matt Hancock. I have sent him a link to the petition and stressed how we want to work with him to create change. The message is simple: more recognition, more funding, more early diagnosis = fewer lives lost. I hope my next update will offer some positive news from the Secretary of State for Health and Social Care. 

Keep going for Jess. Thank you.