Good evening everyone, Sorry I haven't updated you all in a while, I know you would of all seen that we declared victory on this petition before Christmas as with the wonderful and generous help of the independent charity that came forward and paid for Alice's treatment we felt that even though it didn't change the mind of NHS England, it did create enough noise for someone who could help to hear us, and Alice being given the treatment she so desperately needed was indeed a victory to be celebrated by us all. Alice has now gone through all the cycles of her treatment and is doing well, she is not out of the woods yet, but is in a much better place than she was, and ever could of hoped to be without this treatment. None of this would of happened without your support and for that we are eternally grateful. We are still raising money for the charity that came to Alice in her hour of need, we want to give back to them as much as possible, so that they will be in a position to help other people in Alice's position. They are dedicated to helping people that have no other options, that think they are out of options, exactly how we felt when we were told about Alice needing treatment that would not be provided by the NHS. I have said it before and will say it many more times, they are like angels to us, helping us when we thought there was no hope. Please, if you can, visit our donation page and give anything you can spare to this wonderful charity, that has given us so much. Thank you all so much. With love from Jo, Alice and all our family xxx http://m.virginmoneygiving.com/mt/uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserPage.action?userUrl=NicholasNewman1&pageUrl=4