Together for short lives, shorter without Translarna as children die as young as 10 years old

Together for short lives, shorter without Translarna as children die as young as 10 years old due to complications with their lungs and heart as Duchenne affects all muscles. Finley is coming up to 8 years old when Duchenne children start to lose their mobility, most noticeable with losing strength in their legs, and rest of the damage is internal and goes unnoticed. We have reached 4,005 signatures and we want your help to raise awareness and help Finley get this drug that will help him keep mobile and heathy for longer, so he can enjoy his visits to Rebecca House, rather than just turning up to give us rest bite. Finley as you can see is full of life and love, and we want to keep it that way. We will always love him but it makes it easier on the family and his sibling if Finley is heathier and can participate in simple activities like swimming or playing on his Playstation 4. We want to make each day count, so we need the numbers to supporting our cause to grow quickly to apply pressure to the Isle of Man government so they will revisit the decision not to fund Translarna when NHS England have. Any damage done due to him not being able to produce Dystrophin is irreversible so time is not on our side which is why we need your help, your friends help, your friend of friend’s helps and help from any celebs that can help Finley’s cause. Thank you, Finley Aged 7. xx