Thank you to everyone who has signed my petition for more research and better, compassionate care for ME/CFS sufferers. Each signature gets sufferers and their families closer to this goal. It would be wonderful if each of you could share it with one more person to double the signatures anf make real progress. Many thanks to anyone who can.
I have added a Web link below to help give a small insight into what it is like caring for someone with severe ME/CFS. For my daughter the curtains have to be closed all the time as the light is too painful.
I have given the DecodeME research link below which was published in December 2025. It's the largest piece of research for ME/CFS and the first to prove ME/CFS is a physical illness and not a psychological one. At last but there is a long way to go before most professionals know and accept this in their health settings.
https://meassociation.org.uk/2026/06/caring-for-someone-with-severe-me-myfanwys-story/
https://www.meresearch.org.uk/decodeme-initial-results-published/
Thank you again to everyone and to all those who are suffering - this petition is fighting for you too.