Jeanine MaxwellUnited States
Aug 16, 2024

Hi everyone, just wanted to post an update to keep you all in the loop.  I am still working on making this clinical trial happen and finding a way to get this medical grade ketone to other people who can and will absolutely benefit from it.  As you all know, I petitioned Nestle, but they ended up going the D-BHB route. The proper and necessary formulation is a racemic mix of DL-BHB.

As I mentioned in the original petition, this medication is a ketone that people with my son's diagnosis cannot make on their own, and it turned out to be nothing short of a MIRACULOUS from the first dose.  I have been spreading the word in the FAOD community and people are having open discussions with their Drs. That alone is very exciting.  On the other hand, sadly, I recently learned that there are certain unscrupulous companies attempting to restrict commercial access to this life-saving molecule.  That was shocking and terrifying to learn.  And that CANNOT happen.  

I absolutely know in my heart that things are moving in the right direction, and I thank you all for your continued support!

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