Update

Hi everyone!! Here is a quick update:

I have open communication with the dr who did the clinical trial for Nestle. The trial they just did was not for the same medication my son takes, it was for the same type of otc product that he and another child declined on during the shortage.

There will be another clinical trial and I asked if it could be for sodium DL-3-Hydroxbutyrate, she sounds hopeful.  

She has questions regarding the ingredients Nestle product vs what my so takes from UK, so I wrote to the dr who discovered the use of sodium DL-3-Hydroxbutyrate, and he said he'd help answer her questions. In March there is going to be a conference of scientists to discuss this so I gave her alllllll the info I have, and offered her my sons records. In my mind, I have a whole 14 year clinical trial already done. 

Over the weekend I emailed Nestle, pleading for their next clinical trial to be for Sodium DL-3-Hydroxybutyrate. I included the article from the Dr, and a copy of the petition with signatures. Today a hard copy is going out by mail. 

So I'm trying everything to make this happen for everyone!! I am staying hopeful and positive!!!

Thank you all for continued support and prayers!!