Update

Hello everyone, thank you SO MUCH for your support! I wanted to give an update - I was able to get in touch with the person who conducted a clinical trial for something similar (but very different), who knows about the medication my son takes, so fingers, toes and everything else crossed, we can make a clinical trial of Sodium DL-3-Hydroxybutyrate happen in 2024.  I am hopeful and excited! And even more so, I am determined.  I cannot tell you how many lives will instantly improve, and even saved, if given the opportunity to have this medication.

It is a very involved process and I am doing my best to keep all the parts in motion. Please continue to share the petition...every signature matters!!

Again, THANK YOU ALL!!