Latest updates and launch of our social media channels,. follow us on Facebook and Instagram!
There’s a lot happening behind the scenes at the moment, and we’re hopeful we’ll be able to share a full public update very soon. Thank you for your patience — your support is genuinely helping to drive this forward.
Last week, Sam appeared on BBC Radio Leeds to talk about endometriosis and the campaign, helping raise awareness of the challenges patients are facing and why change is urgently needed. A huge thank you to her for stepping in for me last minute when I was in a huge flare.
Alongside this, we’ve launched our Facebook Page, Facebook Support Group, and Instagram. These spaces are for campaign updates, patient support, and community connection. You’re very welcome to join us wherever you feel most comfortable.
Facebook Page: Leeds Endometriosis Community
Facebook Group (please make sure you answer the questions and tick the group rules to gain access): https://www.facebook.com/groups/leedsendocommunity/
Instagram: @leedsendocommunity
We are continuing to gather patient experiences from anyone who has been under the Leeds Endometriosis Service within the last two years. This is completely anonymous, and every question is optional. You can share as much or as little as you want. Your stories help us build accurate evidence of what patients are experiencing and strengthen the case for urgent improvement.
Link to questionnaire:
We also want to highlight the recent APPG report on Endometriosis in the Workplace, which sets out clear recommendations for improving support, understanding, and protections for people living with endometriosis. The findings reinforce exactly why services like Leeds must be properly funded, staffed, and commissioned — because the impact of delayed or inadequate care reaches far beyond the clinic and into people’s daily lives, jobs, and wellbeing.
Thank you again for standing with us. More updates coming soon.