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PKU FORMULA COVERAGE FROM MEDICARE WITHOUT AGE LIMITATION.

This petition had 641 supporters


MEDICARE CURRENTLY HAS A LAW THAT CAPS FORMULA COVERAGE FOR ADULT PKU PEOPLE AT AGE 20. THE AGE CAP NEEDS TO BE REMOVED AND MEDICARE NEEDS TO COVER FORMULA FOR PKU ADULTS, AS IT IS MEDICALLY NECESSARY TO MAINTAIN PHYSICAL AND MENTAL HEALTH OF EACH PKU ADULT. PKU DOES NOT IMPROVE OVER TIME AND THERE IS NO CURE FOR IT. HOWEVER, PKU FORMULA CONTAINS THE OTHER NECESSARY AMINO ACIDS TO PROVIDE PROTEIN FOR PKU BODIES WITHOUT THE AMINO ACID PHENYLALANINE THAT THE LIVER OF PKU PEOPLE HAVE NO ENZYME TO DIGEST PROPERLY. WITHOUT FORMULA TREATMENT THE PKU BODY BUILDS DANGEROUS LEVELS OF PHENYLALANINE IN THE BLOOD AND CREATES WHITE MATTER (A PUSS-LIKE SUBSTANCE) IN THE BRAIN BLOCKING OFF SYNAPSE AND DAMAGING NERVE ENDINGS THROUGHOUT THE BODY.  IT WAS ONCE THOUGHT THAT PKU PEOPLE MAY GO OFF DIET AND DISCONTINUE TREATMENT WITH FORMULA WHEN THE PKU PERSON BECOMES AN ADULT. IT HAS SINCE BEEN DISCOVERED THAT CONTINUING FORMULA AND DIETARY TREATMENT OF PKU IMPROVES DAILY HEALTH AND MENTAL COGNITION. IT ALSO KEEPS AT BAY SYMPTOMS OF SEVERE DEPRESSION,ANXIETY, TREMORS,COGNITIVE DELAY, AND BODY PAIN, TO NAME A FEW. 

WITHOUT COVERAGE FOR PKU FORMULA THE COST OUT OF POCKET IS WELL OVER $2000.00 FOR A ONE MONTH SUPPLY, THEREBY MAKING LIVING EXPENSES UNREACHABLE FOR MANY, IF NOT MOST, PKU ADULTS.    



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