Hi all,
Thank you for your ongoing support and efforts as we seek Expanded Access of tofersen from Biogen. As of now the earliest they'll make it available to me is mid-July. That will probably be too late for me but it will help others with ALS which is good.
Even as I battle #ALS I'm working to ensure the future success of health care communications with the creation of a Health Communication Certificate at my alma mater UNC Hussman School of Journalism and Media.
I've spent 30 years working in health care communications. I've been proud of the work I've been involved with helping to educate patients about diseases, available treatments and resources to support them and their families. To ensure this important communication continues, would you please consider a donation to help make my dream a reality.
If we reach $100,000 in donations, a generous donor has offered to match that. We aren't far off. Can you please help us get to $100,000 so that it gets matched and becomes $200,000?
Thank you for your support, it means a lot to me.
Lisa