Update example patient

A huge thank you to everyone who has signed, please keep sharing so we can get to 1000 signatures, we are half way there.  I know raising awareness of this is distressing, many of those with mild and moderate ME have no idea what the Very Severe disease looks like, it's typical features. However these are sadly familiar to many of those of us with the disease and our specialist doctors who have worked incredibly hard to try to protect us from medical harm.  
https://www.gofundme.com/f/severemergencysavannah-save-severe-me-savannah 
This is a link to an urgent update to one of a number of  young women with Very Severe ME, and describes what she has been going through. This is why my petition is up.  We need the charities to act fast. We need legislation to prevent what is happening.