COMMISSION TO STUDY TESTING FOR LYME AND OTHER TICK-BORNE DISEASES
http://www.gencourt.state.nh.us/statstudcomm/details.aspx?id=1515&rbl=1&txtbillnumber=hb490

Our next Zoom meeting is scheduled for Monday the 28th at 9:00am.

REMOTE: This is the attendee link and invitation that will be used for all future meetings:

https://us06web.zoom.us/j/93853725191?pwd=ckNhbmsrTHNiQ3ppOU1Mc0dyUkFGdz09

Passcode: 313494

IGeneX and Galaxy Diagnostics will be presenting...

From Galaxy Diagnostics:

Galaxy Diagnostics Launches the Most Sensitive Test Available for Direct Detection of Lyme Disease ($295)
https://www.prnewswire.com/news-releases/galaxy-diagnostics-launches-the-most-sensitive-test-available-for-direct-detection-of-lyme-disease-301169364.html

"Galaxy validation data (unpublished) shows that the Nanotrap® Urine Test will often confirm active infection in patients with negative TTT (Two-Tiered Testing) results."

From IGeneX:

Per the note below Dr. Joseph J. Burrascano Jr. will be presenting on behalf of IGeneX. Please watch his video summarized below.

Note to all Commission members:

---------- Original Message ----------

From: Carl Tuttle <runagain@comcast.net>
To: All members of the NH Lyme Disease Study Commission
Date: 06/21/2021 11:32 AM
Subject: Re: Agenda for June Meeting

To Members of the NH Lyme Disease Study Commisson,
 
For informational purposes; not to be discussed outside the monthly meeting. Members can email me individually if there are questions.
 
 
-Dr. Joseph J. Burrascano Jr. will be presenting on behalf of IGeneX and was at ground zero at the start of this epidemic. He was asked by the International Lyme and Associated Diseases Society to record his experiences as a front-line treating physician. I highly recommend listening to his testimony prior to the next Zoom meeting.
 
 
2018 ILADS Webinar - History of Lyme Disease by Joseph J. Burrascano, Jr. MD.
https://vimeo.com/306846706 

Summary: 

Joseph Burrascano, MD's cogent history of Lyme: East Hampton, Long Island NY had the highest rate of Lyme in the world. 1965 internist Sidney Robin coined the term "Montauk Knee".
 
1985   87 seronegative patients all had spirochetes produced using Alan McDonald’s culture technique. “Seronegativity is real” 
 
@7:00  re: PTLDS - "There's never, ever, ever been a description of this Post Lyme Syndrome from an immunological point of view that clarifies what it is and applies to every single patient". 
 
@9.05  Stony Brook study of 21 day doxycycline "... had a 100% FAILURE RATE... THEY KICKED ME OUT OF THE STUDY AFTER THAT; AND THEY NEVER REPORTED THOSE RESULTS." 
 
@9.35 Patient Evaluation: "I took advantage of Dr. McDonald's culture... after treatment ended, if you waited a few weeks, they [patients] were all culture positive. It was failed treatment and a persistence of the infection." 
 
@12.45  Late 1980's "Rocephin came onto the scene... 100% failure rate of 2 weeks of Rocephin, even at high dose... Duration of treatment is really, really what's important." Findings presented @ 1990 Stockholm International Conference. 
 
@13.50  633 patient records reviewed indicated at least 4 months treatment for those "with multiple bites, Lyme arthritis, heart murmurs, hormonally active women, those sick for more than 1 year, age over 60, acute carditis, documented immune deficiency, failed oral treatment." 
 
@26.50 Discovered on lecture circuit Dr. Ed Masters from MO, John Drulle, NJ & Paul Lavoie, San Francisco all independently concluded higher doses and longer treatment necessary. They'd never met or communicated previously. 
 
1990 NIH Gold Stain - 73 chronic patients, 13.5 months mean treatments. Discovered blebs and biofilms.
 
@31.19 "So, whatever happened to this great gold stain? Know what? Nothing. NIH stopped the funding... closed the whole thing down and never again did they ask front line Lyme doctors to contribute specimens to their studies. So, there's some politics one more time." 
 
@32.58 Co infections seem to affect only chronic Lyme patients. 
 
@34.19 Lyme is the thing that takes over the immune system, weakens our defenses…. 
 
@36.52 Lyme is an immune suppressive illness…. 
 
@38.25 McDonald presented cultures at "... a meeting of NYS Medical Society... detractors were people from Yale and Stony Brook who didn't want their patented serologic tests to be usurped, and they started claiming that McDonald was falsifying his data and so forth." 

Carl Tuttle
Hudson, NH