Petition update

TBDWG April 27, 2020 - Written Public Comment

Carl Tuttle
Hudson, NH, United States

Apr 24, 2020 — 

The following comment was posted to the Tick-Borne Disease Working Group for the upcoming April 27th meeting.

If you want Dr. Ben Beard to answer the question below, cut and paste the comment into an email and respectfully demand an answer. Dr. Ben Beard’s public email address is: cbb0@cdc.gov

If Dr. Beard cannot answer that question as a representative of the CDC, what is he doing as a member of this Tick-Borne Disease Working Group?

TBDWG April 27, 2020 - Written Public Comment

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2020-4-27/written-public-comment/index.html

Carl Tuttle
Providing comments in support of the Change.org petition calling for a congressional investigation into the mishandling of Lyme disease.

Through recent events with Coronavirus we are witnessing what the Lyme community has endured for the past three decades:  Faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control whatsoever; a public health disaster.

Our public health officials got away with mishandling Lyme disease because Lyme does not cause dead bodies piling up in the morgue in New York City but at the same time, no one is counting the number of lives ruined by Lyme disease.

So how will our public health officials find a way to maintain the status quo of a dysfunctional system in Lyme diagnosis after this massive tragedy is over?

What is the status of Direct Diagnostic Tests for Lyme Disease Dr. Ben Beard of the CDC?

Persistent infection after extensive antibiotic treatment has been identified through the use of direct detection methods in academic centers [1] and autopsy findings yet the average patient cannot obtain these tests to justify how sick they are with their chronic active infection.

There has been a deliberate avoidance of direct detection methods in order to hide the truth that Lyme disease is a life-altering/life threatening infection capable of destroying lives, ending careers while leaving its victim in financial ruin.

So once again I ask the question Dr Ben Beard of the CDC; What is the status of Direct Diagnostic Tests for Lyme Disease?

Carl Tuttle
Lyme Endemic Hudson, NH

Reference

1. Seronegative Chronic Relapsing Neuroborreliosis. 

https://www.ncbi.nlm.nih.gov/pubmed/7796837

 


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