Petition update

“Let's Talk Ticks” at Litchfield’s Public Library

Carl Tuttle
Hudson, NH, United States

May 17, 2019 — 

Please see the letter below addressed to the New Hampshire Department of Health and Human Services regarding a local presentation at Litchfield’s Public Library. The links provided are made available through my personal Dropbox storage area for use in future legislation/litigation.

The Departments of Health in each state across America are supposed to be “responsible for the health, safety and well-being of their citizens” but receive their marching orders from the CDC so they have been little more than an extension of the CDC’s failure to escalate Lyme disease to Highest Alert.

Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861

WAKE UP AMERICA!

---------- Original Message ----------
From: CARL TUTTLE <runagain@comcast.net>
To: abigail.mathewson@dhhs.nh.gov
Cc: Howard.Moffett@leg.state.nh.us, amknh78@gmail.com, Tom.Sherman@leg.state.nh.us, Martha.FullerClark@leg.state.nh.us, Jeb.Bradley@leg.state.nh.us, James.Gray@leg.state.nh.us, Shannon.Chandley@leg.state.nh.us, Doug.Marino@leg.state.nh.us, kathie@kathiefife.com, Polly.Campion@leg.state.nh.us, jc.salloway@unh.edu, wmarshmd@gmail.com, nhbidc@dhhs.nh.gov, saunderson.george@gmail.com, electdavidkarrick@gmail.com, cmcmahon55@gmail.com, james.potter@nhms.org, michael.padmore@nhms.org, jeffrey.meyers@dhhs.nh.gov, cutler_library@comcast.net, brett.giroir@hhs.gov, tickbornedisease@hhs.gov
Date: May 12, 2019 at 4:24 PM
Subject: “Let's Talk Ticks” at Litchfield’s Public Library

May 12, 2019

New Hampshire Department of Health and Human Services
29 Hazen Drive
State Public Health Agency
Concord, NH 03301
Attn: Abigail Mathewson DVM, MPH, Zoonotic Disease

Dear Abigail,

On May 10, 2019 I and a few other individuals attended your presentation “Let's Talk Ticks” at Litchfield’s public library. During this presentation the seriousness of Lyme disease was brought up and you had mentioned sudden cardiac deaths which as you know can strike without warning signs. All in attendance agreed that Lyme disease is a life-altering/life-threatening infection and I believe it was the librarian who mentioned the case of a mother and daughter residing in Litchfield severely disabled from the disease. You actually commented that you were perplexed as to why the CDC has handled the disease in the manner that they have.

After the meeting I emailed a number of documents that included:

1. Deaths from Lyme Disease

https://www.dropbox.com/s/eo794dx7zspc1ln/Ld%20deaths.doc?dl=0

2. Congenital Transmission of Lyme

https://www.dropbox.com/s/z10em0szgpm8bll/Congenital%20Transmission%20of%20Lyme%202015.doc?dl=0

3. Seronegativity in Lyme borreliosis and Other Spirochetal Infections

https://www.dropbox.com/s/3d6m45jzlhhwalu/Seronegativity.pdf?dl=0

4. Peer Reviewed Evidence of Persistence of Lyme Disease Spirochete Borrelia burgdorferi and Tick-Borne Diseases (700 Articles)

https://www.dropbox.com/s/n09sk90eo6xz7ua/700%20articles%20LYME%20EvidenceofPersistence-V2.pdf?dl=0

5. Letter to past CDC Director Brenda Fitzgerald

https://www.dropbox.com/s/xaul84dqmqgbre0/Brenda%20Fitzgerald%20MD%20Director%20CDC.docx?dl=0

6. DNA Sequencing Reveals Another Novel Lyme Disease Spirochete in Blood of Boy Diagnosed with Psychiatric Disorders, Reports Connecticut Pathologist Sin Hang Lee, M.D.

https://www.businesswire.com/news/home/20160427006073/en/DNA-Sequencing

Documents handed to you at the end of the presentation:

1. Dr. David Volkman’s personal letter to past CDC Director Tom Frieden

https://www.dropbox.com/s/sl5x3gzguowpj6n/Volkman%20letter%20to%20Frieden.doc?dl=0

2. Quest Diagnostics Western blot example

https://www.dropbox.com/s/ppus0unm0j2oiff/Western%20Blot.pdf?dl=0

3. Borrelia were not killed by doxycycline alone

https://www.dropbox.com/s/e8axeoy7ow6ox8j/Borrelia%20were%20not%20killed%20by%20doxycycline%20alone.docx?dl=0

4. NH Tick Study from UMass Amherst

https://www.dropbox.com/s/kvxnp7tffoy4yas/NH%20Tick%20StudyText%20added.doc?dl=0

My email to you dated May 11 detailed the activities of Dr. Gary Wormser of New York Medical College who has been fixated on the acute stage of Lyme disease while hiding the late stage horribly disabled Lyme patient population:

Email to Abigail.Mathewson May 11 2019

https://www.dropbox.com/s/xmz0a1kfzb5yha9/Email%20to%20Abigail.Mathewson%20May%2011%202019.docx?dl=0

Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states; the latter being ignored for three decades. Patients who have had a prolonged exposure to the pathogen are almost always incapacitated.

Purposely avoiding the advanced stage of disease hides the horribly disabled and anyone unable to see this is somewhat naive.

Untreated Lyme is destroying lives, ending careers while leaving the patient in financial ruin as reported by the disabled Lyme community for the past three decades. The absence of a bulls-eye rash after tick bite allows patients to progress to severe neurological disease instead of obtaining a prompt diagnosis and early treatment. It is well known that 20% of those who are treated early do not recover.

Examples:

A previously healthy cadet was found unfit for duty receiving a 100% service connected disability after discharged from active military service: (The cadet was 24yrs old)

1. Latent Lyme Disease Resulting in Chronic Arthritis and Early Career Termination in a United States Army Officer  (Published: 06 March 2019)

https://academic.oup.com/milmed/advance-article/doi/10.1093/milmed/usz026/5370051?searchresult=1

2. Nicole Malachowski: Unfit for Duty from Debilitating Tick-Borne Disease

http://cdmrp.army.mil/cwg/stories/2018/nicole_malachowski_profile

“Her medical retirement, however, was premature. At only 43 years old, she was deemed unfit for duty due to neurological damage from tick-borne illness.”

______________________

Abigail: You had mentioned the need for additional tick studies but the one completed by UMass Amherst already disclosed that 77% of ticks in the town of Litchfield were carrying Lyme disease. You also mentioned that surveillance personnel and funding was needed to complete these studies.

All due respect Abigail but why isn’t the New Hampshire Department of Health surveilling the disabled Lyme population and reporting back to the CDC as these numbers continue to grow. As you know, the CDC is estimating 329,000 new cases of Lyme this year and that number is five times the AIDS epidemic and twice as prevalent as breast cancer.

There is no short term cure for the Lyme patient who went months, years or decades before diagnosis as these patients are completely ignored and left to fend for themselves. There is high incidence of treatment failure for those prescribed the one-size-fits-all IDSA treatment recommendation.

Patient testimony is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin so why is Lyme disease still considered a low-risk and non-urgent health threat? There are no Public Service Announcements informing the public that you could become horribly disabled or die from Lyme disease. It’s time to escalate Lyme disease to Highest Alert and establish a Manhattan project to find a cure for all stages of disease.

Lyme disease is a public health disaster/crisis which has gone on for decades all under the watch of the New Hampshire Department of Health and Human Services which is supposed to be “responsible for the health, safety and well-being of the citizens of New Hampshire.”

We all know that we’re dealing with an antibiotic resistant/tolerant superbug as the evidence is overwhelming found in 700 peer reviewed publications. An astute fifth grader with access to PubMed could find these references but for some unknown reason our public health officials at the Centers for Disease Control has turned a blind eye to this science leaving the sick and disabled to fend for ourselves.  

As spokesperson for the horribly disabled Lyme community I am challenging the New Hampshire Department of Health and Human Services to demand an upgrade of Lyme disease to Highest Alert by the US Centers for Disease Control in order to increase funding to the threat level Lyme disease commands as lives continue to be lost to this life-altering/life-threatening devastating disease. Please escalate this appeal to the Office of the Commissioner.

A prompt response to this inquiry is requested.

Respectfully submitted,

Carl Tuttle

Hudson, NH

Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
Raphael B. Stricker, Lorraine Johnson
Published: January 02, 2014DOI: 10.1371/journal.ppat.100379

http://www.plospathogens.org/article/info:doi/10.1371/journal.ppat.1003796

Cc: -The New Hampshire Medical Society Advisory Council on Tick and Other Insect Borne Diseases

-The Tick Borne Disease Working Group

-ADM Brett P. Giroir, M.D., Assistant Secretary for Health

-Rep. Howard Moffett sponsor of  House Bill 490

https://legiscan.com/NH/bill/HB490/2019


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