Petition updateTell the FDA to stop denying ALS patients treatment options
URGENT: Please Send a Letter to Congress Today!
Jay Smith with Hope Now for ALS
Feb 22, 2016
IMPORTANT! This Thursday, February 25, the Senate Committee on Homeland Security and Government Affairs will have a hearing on FDA reform that will include many different proposals and ideas for speeding up access to investigational medications to people with serious and life-threatening illnesses.
http://www.hsgac.senate.gov/hearings/connecting-patients-to-new-and-potential-life-saving-treatments
One of the topics that will be covered is the state Right To Try laws, among others. Members of this committee say it is helpful to hear from people who would be impacted by the policies they are considering, specifically, letters that explain what policies you support or would want to see changed.
Please take a few minutes to WRITE A LETTER to the Chairman of the Committee so it can be part of the official record of the hearing. You’ll need to both email and hard copy mail the letter, if possible. Below are the details with his mailing address, Once you’re done, you can email the letter to his staffer, Josh McLeod,
Josh_McLeod@hsgac.senate.gov
The body of your letter should be personal to you. This is an opportunity to share with members of Congress who will be talking about FDA reform what you would like to have access to and what kind of trial or compassionate use process you would like to see. We would, of course, be grateful if you expressed support for state Right To Try laws, but it is most important that your story or perspective is shared. Please feel free to share this email with your network—the more letters the better.
[Date]
Sen. Ron Johnson
Chairman
Senate Committee on Homeland Security and Governmental Affairs
328 Hart Senate Office Building
Washington, DC 20510
Dear Chairman,
[Body of letter]
Sincerely,
[name]
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