Petition updateStop Medicare Changes That Could Leave Blepharospasm Patients Functionally BlindFinal Week to Speak Up: Protect Blepharospasm Treatment Access Before May 16
Benign Essential Blepharospasm Research FoundationBeaumont, TX, United States
May 9, 2026

Dear Friends,

As we enter the final week before the Medicare public comment period closes on May 16, we want to begin with something simple and sincere: thank you.

This has been an extraordinary advocacy effort. In a short time, this community has come together in a deeply unified way - sharing stories, signing, commenting, calling, and standing up for one another. It has been truly powerful to witness.

We are now approaching 1,300 petition signatures, each one representing a voice helping protect access to individualized blepharospasm treatment.

Last week, BEBRF participated in a MAC webinar, noted some changes in the proposal language, and reaffirmed our opposition to any limits on individualized treatment.

This progress matters - but we remain vigilant.

 

What BEBRF Is Doing This Week

  • Continuing direct outreach with MACs, CMS, and decision-makers
  • Coordinating final signatures, comments, and video submissions
  • Organizing and reviewing all community input for submission
  • Delivering materials before May 16 via email and overnight mail
     

Final Calls to Action
If you already signed, please consider:

1) Revisit the Petition

2) Contact Your Elected Officials

3) Share the Petition

  •      2–3 friends or family members
  •     Others who understand the importance of treatment access
     

For many in this community, this is not policy. This is a quality of life issue.

Thank you for standing together in this final stretch to protect access to individualized care for blepharospasm patients.

With deep appreciation,
The BEBRF Advocacy Team

 

 

Note: Signing, sharing, and commenting on this petition is completely free.

 

Any optional contribution made during signing goes to Change.org to help promote the petition and increase visibility - it does not go directly to BEBRF. Promotion may help reach more people, but it does not guarantee additional signatures.

 

To support BEBRF directly, you can donate here:  Donate to BEBRF

 

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