Update 33; Still confused

We've found it interesting that the CRG have engaged with us but almost everyone else has remained silent on this issue. We've largely been ignored or brushed off by everyone we have written to or sought support from. 

A small number of professionals and organisations have reached out to us privately for which we've been grateful. The encouragement and direction provided by them privately has been really appreciated. 

Unfortunately we now feel like our influence is pretty much exhausted. This issue perhaps hasn't attracted the attention or concern we thought it would. Despite all our work and research, the silence from some just doesn't make sense to us.