Since we published this petition many professionals have reached out to us privately. We've been supported and endorsed by many within the NHS.
This week we were fortunate enough to be offered a meeting with leading figures in NHS England, a regional CHD network lead and a leading charity. We feel we have a duty and responsibility to ensure the information we relay is accurate. Therefore we'll explain our understanding from this meeting at a later date.
Awareness of this issue is key and will help to influence change sooner. This isn't widely known or openly publicised. With your help we feel we have made a difference already. Please sign and share again with friends and family.
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Thank you so much.