Message aux signatairesPlease make Translarna available in Ireland to help boys with Duchenne Muscular Dystrophy

Meet Harry

Nick JonesCavan, Irlande

24 oct. 2017

Meet Harry! Harry lives in England and takes translarna. He is on a managed access programme arranged between the NHS and the drug company. Harry thinks the Irish boys should also a be able to access translarna. Simon Harris TD could you work with the HSE to help negotiate access for our Irish boys?

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