Atualização do abaixo-assinadoPlease make Translarna available in Ireland to help boys with Duchenne Muscular DystrophyMeet Harry

Nick JonesCavan, Irlanda

24 de out. de 2017
Meet Harry! Harry lives in England and takes translarna. He is on a managed access programme arranged between the NHS and the drug company. Harry thinks the Irish boys should also a be able to access translarna. Simon Harris TD could you work with the HSE to help negotiate access for our Irish boys?
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