Petition updatePlease make Translarna available in Ireland to help boys with Duchenne Muscular DystrophyThe latest news on Translarna - in short - we're still waiting...
Nick JonesCavan, Ireland
14 July 2017
On Wednesday the 12th of July, the MDI CEO and Information Officer spoke at the Oireachtas Joint Committee on Health meeting on the topic of Orphan Drugs, trying to speed up and improve access to new therapies for Neuromuscular Conditions. The full coverage of the meeting can be viewed at the following link. MDI's part of the meeting begins 2 hours into the video. On Wednesday the 12th of July, Our CEO and Information Officer spoke at the Oireachtas Joint Committee on Health meeting on the topic of Orphan Drugs, trying to speed up and improve access to new therapies for Neuromuscular Conditions. The full coverage of the meeting can be viewed at the following link. MDI's part of the meeting begins 2 hours into the video. http://www.oireachtas.ie/viewdoc.asp?DocID=36722&&CatID=127
Copy link
WhatsApp
Facebook
Nextdoor
Email
X