I'm still working at getting onto daytime TV where some of the programmes have literally millions of viewers so I'm hoping I will get the signatures needed to get my petition for research to parliament. Its breaking my heart hearing from ppl that are literally dying from this horrendous disease and who are in the most traumatic pain that is off the scale. Some ppl have said and medical professionals have commented that even childbirth isn't as painful!! The emotional pain is terrible too so please PLEASE help me to help others 

Thankyou All ❤