Karen is getting thinner and thinner and we are all very worried that she will die. It has been more than six months since East Sussex Healthcare NHS Trust (ESHT) withdrew Karen’s I/V feeding. She is still not managing anywhere near enough feed and water via her PEG-J feeding tube. Karen desperately needs I/V feeding and I/V fluid without delay.

      It has been more than 6 weeks since we emailed Joe Chadwick-Bell, the CEO of ESHT. She still has not responded to us about our serious concerns and our call for urgent action. She also has not responded to our follow up letter. The Trust have not responded to Maria Caulfield our MP either. Maria Caulfield is a Health Minister.

      The CEO has not made any suitable arrangements for Karen to commence I/V feeding and I/V fluid and has not indicated to us that she has any intention of doing so.

      Karen says that ‘the Trust are obviously just waiting for me to die.’

      Thank you to all of you who have signed and shared the petition. Thanks also to those of you who have chipped in to promote the petition and / or left a supportive comment. It is all really appreciated by us. Please continue to tell people about this petition and continue to share it on-line so that more people can sign to try to help Karen.

      Time is running out for Karen.

Best wishes to you all,

Karen, Heather & Michael