Aggiornamento sulla petizioneRequest for Senate Hearing on Inequities With Chronic Lyme DiseaseCall to Action for #MakeLymeLoud Letter Writing Campaign
Patient Centered Care Advocacy GroupBurtonsville, MD, Stati Uniti
27 gen 2025

If you are concerned about the failure of government and private organizations that determine policy for Lyme disease and conflicts of interest related to the IDSA Guidelines, please take 30 seconds to sign on to the letter to President Trump to make Lyme disease a priority for his Administration.

Whatever your party affiliation or opinion of Trump, this letter is a key part of a multi-channel campaign to #MakeLymeLoud in 2025, which is the 50-year anniversary of the date Lyme disease was identified by Allen Steere.

In addition to asking for Trump’s support for funding and upcoming legislation, this letter is a stepping stone in our quest for a congressional hearing to investigate controversies and inequities associated with chronic Lyme disease. It’s also complimentary with the work of advocates who are reaching out directly to the new administration and the new HHS Secretary once that position is confirmed.

President Trump can also take Executive actions like the following:

o Direct the Justice Department to investigate conflicts of interest and antitrust behavior related to the IDSA Guidelines for Lyme Disease.

o Ask the Director of the Office of Management and Budget (OMB) to require CDC to adopt “people-level” indicators to measure CDC’s performance in combating Lyme disease and ensure that taxpayer money is being used wisely. An example of these ​indicators are “reduce the rate of treatment failure” and “reduce the average time from onset of symptoms to diagnosis.” Current indicators are tied to CDC patents.

o Direct the HHS Secretary and NIH Director to investigate evidence that $30 million in NIH grants for translational research were misappropriated to support articles that attacked and smeared Lyme patients and numerous researchers and healthcare providers.

You can view the letter and register your support in less than 60 seconds at the following link: https://app.oneclickpolitics.com/campaign-page?cid=PJS01pMBKqtrzFaEp_Bw&lang=en

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