HIDDEN ILLNESSES
APPEARANCES ARE DECEPTIVE

I have lost a lot of weight and so I look a lot better than I did! Does that mean I feel better NO!
My tremors are really bad when I try to do anything, at rest they are not to bad, my torso spasms when I walk, my jaw spasms when I sleep so I have to wear a gum shield, my neck is moved over to the right and tilts slightly, and a lot of the time it locks and my head pulls right over to the right, my shoulder muscles are huge.
After 7 years my neurologist has finally referred me to see someone in London so that has given me hope.

I also have Chronic Headaches, by Chronic I mean I have a headache continuously 24/7 and have had for 3 years 4 months, I have been told today that my nerve block hasn’t worked
I don’t know what we do next!
The pain clinic are going to discharge me!!
Everyone says I’m to COMPLICATED
Luckily I am still under the Headache Clinic in Stoke Hospital so I will see what they say!

I have also been told I have Postural Hypertension which is when your blood pressure drops when you stand up!

All these conditions cause other symptoms I have Depression, Anxiety, I can’t sleep properly, I am fatigued, dizzy to the extent of passing out, I lose my balance and fall over!

I have had enough!!!
But I look fine
I will keep trying all the treatments and hopefully something will help eventually.

I will put the photo but remember appearances can be deceptive!!!!

I DON’T KNOW WHERE TO TURN I’M NOT COMPLICATED I JUST WANT HELP �