Mise à jour sur la pétitionRaising Dystonia Awareness a Neurological Movement Disorder to get better treatmentDYSTONIA IS A CHRONIC CONDITION,NOT A COUNTRY DOCTORS NEED AWARENESS
Sharon JonesStafford, ENG, Royaume-Uni
25 mai 2022

Dystonia is a debilitating Neurological condition, which causes involuntary movements just like Essential Tremor and Parkinsons Disease. It is the 3rd most common Movement Disorder Worldwide. 
It is not a country!!!!!

There is over 100,000 people in the UK alone officially diagnosed with Dystonia and many more Worldwide.

Dystonia can be in a single place, a few places on one side of body or generalised all over the body, in which Muscles spasm and pull, making the sufferer to experience chronic pain day in and day out.

So why do many medically qualified professionals/people have so little or no knowledge of this Neurological Condition? 

Dystonia is very common but other than in Neurology very little is known about it. GP’s and General Medical Doctors/Medical Staff should be at least able to spot the obvious & clinical characteristics that should outline a need for a referral in order to make the first vital step for the Patient, to enable them to get a diagnosis and get the help they need quickly. 

Young medics fundamentally need to have simple training included into training so they can come to a quick and easy decision in order to refer patients to a more senior member, then hopefully on to a Neurologist!

I'm asking for your help as a Dystonia sufferer myself for you to help me and many others simply get the help and treatment they deserve.

Soutenir maintenant
Signez cette pétition
Copier le lien
Facebook
WhatsApp
X
E-mail